Tuesday, October 30, 2007

Please Pray for Janessa

This babies uncle goes to our church. I'm sharing the story so that as many people as possible can be lifting them up in prayer.

Saturday, October 27, 2007

We had some hard news this week concerning our unborn baby girl. We wantedto share it with you so that you can pray for us. We'll let our little oneshare her story, so you can get to know her too!Thanks for praying for us! ~Jon and Amy Lyttle

"Allow me to introduce myself. My name is Janessa Lyttle. I am just over20 weeks old now. That is my gestational age, as I am not born yet. Mymommy is Amy and my daddy is Jon. I have a big brother, Evan (15 months),who you might know. I am still in my mommy's belly, but I already needyour prayers. You see, I have a few very serious physical "defects," as thedoctors call them. I believe God made me the way I am, and He doesn't makeany mistakes, ever! But, since we aren't in Heaven yet, there are certainthings that help us stay healthy and able to live on earth. My problemswill make this very difficult for me, and so I need you to pray for me andfor my little body. Of course, Mommy, Daddy and Evan need your prayers tooas they wait on God's timing and for grace to see them through the hardtimes ahead. My name, Janessa, means "God is Gracious", and we all believethat is true! We serve a great God, and we want Him to receive the gloryfor whatever He decides to do!""On Thursday, October 25th, my mommy and daddy and Evan got to see me forthe first time via ultrasound pictures. My mom and dad thought I lookedjust perfect to them. I even gave them a wave, and showed a bit ofpersonality by not cooperating with the ultrasound tech. However, when theymet with the Dr. afterwards for an appointment, she let them know that I hadmultiple birth defects. She gave them a list of things that were wrong withmy body, and then said we should go see a Maternal-Fetal Medicine doctor,on Friday, who would re-do the ultrasound, review the findings with them,and discuss the future prognosis. Dr. Bayliss, the specialist, was verysweet and compassionate as he explained the problems he found on theultrasound. He said that he saw a problem with the brain calledHydrocephalus (fluid in the brain) and Lobar Holoprosencephaly (a brainmalformation). I also have a congenital heart defect called a HypoplasticRight Ventrical (the chamber that pumps blood to the lungs isunderdeveloped). I also only have 2 vessels in the umbilical cord, insteadof the usual 3. Unfortunately, the combination of these problems points toa chromosomal abnormality- possibly Trisomy 13 or Trisomy 18, which are bothLethal syndromes, meaning I would not be able to live very long, even if Idid make it through delivery. My mommy had a Amniocentesis done on Fridayand they will do a complete chromosomal defect test on that to see if theycan, by chance, rule out the Trisomy 13 or 18. If so, it may be possiblethat I would have Down's Syndrome, which has a higher rate of survival. Inthat case, all stops would be pulled to make sure my mommy and I get thebest care possible up to my birth and afterwards. One bright spot in theirday was finding out I was a girl!"

"Mommy and Daddy would ask you to pray specifically for me in the followingways:1) Pray for a miracle- that I, Janessa, would be born alive so that Mommy,Daddy, my big brother, and the rest of my family can meet me. My due dateis March 10th. (I'm halfway there already!)2) Pray for healing- we know all things are possible with our God!!3) Pray for wisdom for the doctors and counselor to know how to prepare usfor the future.4) Pray for grace for each moment."

"Thank you so much for supporting my family during this time. I really hopeI get to meet you someday- if not here, then in Heaven. I know that yourprayers for healing will be answered- in Heaven I will have a complete,perfect body even if I don't get one here. All tears will be wiped away,but I have a feeling that we'll be able to remember what we went through,but we won't be sad because we will fully understand what God was doing. ToGod be the glory!"

5 comments:

Bethany said...

Hey I am going to email you later today. I have a friend who carried a baby to term with similar circumstances....anyhow, I will email you later today or tonight.

Michelle said...

I just found out that a girl from Church was diagnosed with this too... strange. I will pray.

Sarah said...

Michelle,
I wonder if it's the same person....closer reading of the email revealed that it is the sister of a man who goes to our church.

Anonymous said...

Hopefully everything will be alright. I will keep this baby in my prayers.

Crazy Momma said...

http://www.wearethesimmons.blogspot.com/

My friend Jenny went through a lot of (I think) similar issues with her son Jackson. This is the link to her blog....it goes back a while. I am SURE she would be happy to be contacted--she's amazing.